Saturday, December 21, 2013

Am I having an ectopic pregnancy? My personal story.

Ryan and Maddy, planting Olivia's memorial tree.
 
 
 
If you are reading this blog, you probably fall in 1 of 2 camps:

1) You are my friend, and read my blog. (Hi friend!)

2) You stumbled upon my blog because you are researching ectopic pregnancy -- either thinking that you may be having one now, or you are looking for stories of people who have had one. (In that case, welcome new friend! Although I'm sorry you had to find me.)

I know how hard it is to interpret symptoms -- to know what is normal, and what requires medical attention. I know it's easy to second guess yourself. I know what it's like to wonder if you are just overreacting, or if something is really wrong.

Since many of the symptoms of ectopic pregnancy can mask themselves as a lot of other issues, I thought I'd share more in depth about my story of my ectopic.

If this post sounds a bit clinical or devoid of emotion, I'm sorry. Trust me, going through this experience is probably one of the MOST emotional I've ever had. I've got LOTS of other resources on this blog if emotional support is what you are looking for. (If you are new in your loss, you may want to go through the archives in my blog to December of 2011 when my ectopic was.)

For the rest of you, I hope that somehow you will be helped by reading my story. And since yesterday was the 2-year anniversary of my rupture and loss of our baby (who I named Olivia), I think now is just as good of a time to share as ever.

So here we go . . .

Pregnancy tests and symptoms:

My period was a week and a half late. I had no other pregnancy symptoms, but maybe very, very mild smell sensitivity and a teeny weeny bit of queasiness. The pregnancy tests were negative (I took several), up until I was 5 1/2 weeks along. And I got a very strong positive.

(Now, I also tested positive "late" With Maddy. But I was having way more symptoms, mostly nausea, with her.)

This time, I had hoped the lack of nausea was a good thing. I thought, maybe this one's a boy... Or "every pregnancy is different."

I knew in my heart the lack of symptoms wasn't good news, but I only thought maybe a possible miscarriage. I had no reason to suspect ectopic... Yet.

Cramps:

I joked with my friend that this time my uterus was "cranky." I don't remember exactly when the cramping started. I remember having cramps one day, and I had to lay on the bathroom floor for about 15 minutes. They were sudden and made me stop everything. They were over quickly, but still made me late for work.

I researched cramping in pregnancy, and couldn't decide what to classify this as. Mild? Moderate? Severe?

"Severe" was probably what it correctly should have been labeled, but since it was over so quickly, "mild" seemed to make more sense.

Plus, I was kinda convinced I'm a wus when it comes to physical pain. So maybe the cramping felt severe to ME, but if someone else had felt it, it probably would have been mild, I figured.

About a week after we found out, I had about 1-2 hours worth of cramping. Same scenario. I remember posting on FB "So glad for a daughter who occasionally sleeps till 10.) Well, that was because I couldn't get out of bed from cramps.

I chalked it all up to "normal" stretching and growing of my uterus. I did not tell anyone seriously about the cramping, other than the "cranky uterus" joke.

One day while I was at work, the cramping came back. From the time I got a positive, to the time my tube ruptured, I was having more cramping at greater intensity, duration and frequency. And this particular day, it was so bad I could barely walk.

I was taken to my parents. My dad, who is a PA, did a quick abdominal exam to see if he could locate the pain. Ironically, I felt the most pain when he pushed on my right side, even though we later learned Olivia had implanted in my left tube.

He thought that either I had an obstructed bowel, had an ectopic pregnancy, or I think, appendicitis.

I was hoping for appendicitis.


Ultrasounds:

My parents took me to the ER. They did a urine pregnancy test, which came back negative. I insisted that I was pregnant, and they did a blood draw.

My HCG was around 500. They told me to get my blood drawn in two days to compare the numbers.

They did both an external an internal ultrasound. They did not find anything... No sac, no heartbeat. Nothing.

The only thing was that my lining was thick which would be consistent with being pregnant.

The ultrasounds took forever, and were emotionally excruciating. The technician couldn't say anything, but I knew there was no baby on the screen. I was at the ER for about 4 hours, and most of the pain had actually subsided before I was seen. My dad had insisted I get seen anyway.

I was sent home being told I had either an ectopic pregnancy, a threatened miscarriage, or I was just earlier in my pregnancy than I thought I was. I knew the last option was NOT the case, but as that was the only option that gave me hope, I clung to it.

I was 6 1/2 weeks at the time of the ER visit.

HCG:

My HCG seemed to bounce around. That is the only explanation I can think of as to why a urine pregnancy test was not showing up positive when my HCG was at 500. Two days later, when they retested, my HCG was 850.

The increase was encouraging, but because my numbers didn't double -- they were worried about the placement of the baby.

Bleeding:

I didn't start spotting until I was at the ER I had some slight pinkish spotting.

It picked up a little that day, but not what I would consider to be as heavy as a period. The next day, I barely had any spotting. The nurses seemed encouraged that the bleeding had slowed, although they told me they were still concerned about the placement of the baby.

The next day, after news that my HCG had gone up, the cramping and bleeding picked up. I knew I was miscarrying.

After about an hour or two after everything started, I felt the need to push. I pushed out tissue. It was grayish and covered in blood, but was not a clot. It was about the size of what my ring finger and thumb make when I put the tips of my finger together in a circle.

I saved the tissue. My mom came over, and having experienced miscarriage herself, told me that this was the placenta and baby. We wrapped up the tissue sanitarily, double bagged it in
Ziploc, and put it in the fridge to save for the doctors.

The next morning, we were scheduled to go on a vacation. I called the on-call doctor that night, and asked if I should go.

They informed me that I could go, but must stay close to a hospital and must go in if my bleeding increases or I'm in pain.

The bleeding did not increase, and was about the same as a period. I went on vacation (though it was all very stressful and emotional.) Strangely I felt more pregnant during this time, but I just thought it was from my hormones trying to go back to normal.

Rupture:

For 3 days, I was for the most part pain free. I might have had some period-like cramps to go with the bleeding, I honestly don't remember. Those 3 days were honestly a fog of shock and grief, of believing I was no longer pregnant.

I had "miscarried" on Friday, and my post-miscarriage appointment was scheduled for 9 am on Tuesday.

As I was putting on my coat to go out the door for my appointment, I felt something like a pop, and very, very intense pain on the left side. It quickly radiated throughout my entire abdomen.

I would not classify this as a cramp. It was more like feeling like I had been stabbed in the gut.

I expected it to go away, but it did not. I did not want to be late to my appointment. I couldn't really walk very well. I could make it a few steps, then had to squat down to try to catch my breath. I called my parents and let them know I was in a lot of pain. They offered to come pick me and Maddy up and take us to our appointment, but I was afraid of being late. I insisted I was OK.

You, the reader, should know that I was NOT OK. And honestly, I knew I wasn't OK.

I simply didn't want to be a drama-queen. I didn't want to inconvenience anyone. I wanted to be superwoman, I guess. I just wanted to take care of it on my own.

Getting in the car and driving myself is probably one of the stupidest things I've done. Deep inside, I knew my tube had ruptured. I knew it.

I was in so much pain, it took me 30 min to drive 15 minutes away. I passed a fire station, and debated whether I should stop there and ask them to take me by ambulance. Again, not wanting to be drama (and also wondering if we could afford an ambulance ride), I opted again to try to cope with the pain instead.

I was dry-heaving in the car. The pain was so intense, it was causing me to throw up. I was also bawling. Maddy was in the backseat, and kept telling me not to cry, and that I would be OK. I also kept telling myself I would be OK. The whole drive, in between dry heaves, I was repeating aloud, "I'm OK. I can do this. It's just a drive. I'll be fine."

When I got to my parents, they met me outside. My dad pulled me from the driver's seat, as I could no longer stand on my own. My mom grabbed Maddy and took her inside, then quickly came back out to help my dad move me to the back seat of his car, where I curled in the fetal position. My parents debated which one should take me in. My dad decided that he should since I might need to be carried. My mom then called the doctor to let them know I was in bad shape, and to bring me a wheel chair when I got there.

She also called Ryan to let him know what was going on.

When we arrived at my OB/GYN, they got me in right away. Dad helped me in the wheelchair, and brought me back to the exam room. I couldn't stand or dress myself. So a nurse took off all my clothes, and got me in a gown, while completely supporting my body weight.

I did not want to be moved to an ultrasound room as everything just hurt too much. The dr did an internal exam (excruciating) where she determined that my cervix was open and everything seemed to be cleared out. Then she wheeled in the portable ultrasound machine, where she could see fluid and a mass by my ovary.

She said that the tissue I had passed was likely my uterine lining all rolling up and coming out in one clump.

She told me I had an ectopic pregnancy, that my tube looked like it ruptured, and I needed emergency surgery. The nurse got me dressed, and I called Ryan to let him know to meet me at the hospital as I would be having surgery right away.

It was hard to talk as I hurt so much. To Ryan, it sounded like I was dying. He came to the hospital expecting to say "good-bye" to me forever.

Surgery:

The nurse got me dressed again, and wheeled me out to my dad's car, where he took me 5 minutes to the local hospital. He wheeled me back in to the hospital, where they receptionist was trying to check me in. They briefly left me alone in the lobby for my dad to move the car to a parking space. I began dry-heaving again, and shaking uncontrollably.

They moved me to a room, where I had to go over my medical history several times. The anesthesiologist came in several times to make sure I wasn't allergic to anything. The nurses stayed in my room. They FINALLY gave me a shot (I don't know what it was) to help control the pain. As soon as they gave me the shot, I started throwing up bile. They told me it was the strongest pain medicine they had.

I remember them putting a band on me with my blood type, and told me I may need a blood transfusion.

After a few minutes, I felt some pain relief. The shaking stopped.

It only lasted about 10 minutes. After about 10 minutes, everything (nausea, shaking, pain) would come back, and I'd have to get another shot.

Everyone in our family came to the hospital. I only saw my dad, Ryan and my mother-in-law. The doctor came in and told me what happened. She said the baby died when my tube ruptured. I was 7 1/2 weeks at this time.

By the time I was wheeled into surgery, I was crying from pain again. The shot had worn off. My doctor told me she didn't know what my insides would look like. She said I might have to have a hysterectomy, but she would save everything she could. She said "I'll take care of you baby girl. I'll take care of you."

She gave me the comfort I needed at that time.

I briefly felt fear as they put me on the operating table, and everyone had masks. The anesthesiologist told me he was giving me the medicine. I was afraid to go asleep because I wasn't sure I would wake up. But I was so ready for relief, I gave in readily when sleep took over.

Recovery:

I had a hard time waking up from surgery. It was nighttime (maybe 7 pm) when I woke up in recovery. I kept having dreams that they moved the baby back to my uterus, and I was still pregnant.

 My mom and Ryan were with me. Apparently the nurses had been trying to wake me up for a long time.

I asked if I had anything left in there, and Ryan told me they saved my tube.  I asked if I had had a transfusion. Ryan said they took out the baby and tissue, and a softball-sized blood clot. I had lost a 1/2 liter of blood.

My doctor had (unbeknownst to me) gone out to my family after recovery, and showed them pictures of the pregnancy and clots. She let them know that the baby had implanted in my fimbrials (the fingerlike part of the tube that "catches" the egg from the ovary, and draws it into the tube.) Because that's where she implanted, my tube literally just split down the side when it ruptured, as opposed to worse damage that would have happened if she were in the middle of the tube.

Because of that, they scraped my tube clean, suctioned out all the blood, and were able to cauterize my tube back together.

I had the key-hole surgery, so I have 3 small scars. One in my belly-button, one on my left side by my hip, and one right above my C-section scar.

They discharged me before I felt ready. I had to get my clothes on (which didn't fit after the bloating from the surgery). They packed me up in our car (even though I couldn't walk on my own), and Ryan took me home.

I can't remember how long it took to feel normal. But I felt very weak for a LONG time.  I was bloated, and had horrible pain from the gas they pumped in me. My tube hurt for a long time. One of my incisions got infected and needed some extra TLC.

2 years later:

As a result of my ruptured tube, I still get lots of pain in that area. It usually comes on suddenly, and makes me gasp a little in pain, or suck in my breath till it's gone. The pain is less frequent than it used to be. When I first started trying to conceive, I had panic attacks thinking that I was having another ectopic.

The last two pregnancies I've had have been in an undetermined location. It appears as though I have just miscarried -- but since my HCG was slow rising, and they could not locate anything on ultrasound, I'm not 100% convinced they also weren't in my tubes. But we'll never know for sure. I just refer to those pregnancies as miscarriages.

My periods were also messed up following my rupture. My periods became more frequent, with more clotting and more spotting. My periods interfered with my daily life. Just recently, I had my FIRST (FIRST!!!!) normal period in 2 years.

My scars are barely noticeable. I had a test done on my tubes this summer, and my tubes are clear. However, there is scar tissue on the one that ruptured.

I have a higher risk for ectopic now.

I'm still waiting for a rainbow baby, and hope that one day, we'll have a baby in-utero that is healthy!



I hope that this has helped you. As always, if you want to share your story (ectopic or other pregnancy loss), please email me at renyeart@gmail.com.

26 comments:

  1. Thank you for sharing this. I wish I had read it when you first wrote it, it would've helped me at that time too. It's still helpful to read about someone elses experience. I lost my tube and now have one ovary and one tube on opposite sides. My periods are now extremely painful at times. As usual, I can relate to both the lies we tell ourselves and the coping mechanisms. Hugs.

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    1. I would like to thank you for sharing this great information with us. I am really glad to learn about this because it helps me.. I know one more site how pregnant am i

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  2. Wonderful review.Thanks for sharing.

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    1. I'm glad it was helpful. Thanks for reading.

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    2. I have a question, I also had an ectopic but I font remember what side was removed. I have a scar in my belly button and on my left side. I am now pregnant again and having very light cramps on my left side.. could this just be from scar tissue if this is the tube that I had surgery on?

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  3. I've never had an ectopic pregnancy and can imagine the pain. Miscarriages are difficult. I had a "routine" miscarriage and then a blighted ovum miscarriage. That one was odd, not like "normal" miscarriages either and I also hemorraged and my body lost dur much blood I began entering into shock and needed to be delivered to he medical facility in an ambulance and have emergency surgical treatment. In both scenarios of which the very first I technically had a child die inside me and the second, my body thought it was preggo ... Both left me feeling the exact very same despair and grief. Yes, Miscarriages are really hard.

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    1. I'm so sorry for your traumatic experiences and losses.

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  4. thank you for sharing this. i was diagnosed with unruptured ectopic pregnancy a week ago. It was our 1st baby. i hope i can be as tough and resilient as you are. God bless you and your family.

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    1. Lyra, I'm so sorry for your loss. Please know, I never once considered myself tough or resilient. This experience broke me to pieces. So please, feel free to feel however you need to feel during this time, in a way that is right for YOU. If you read my blog starting in December of 2011, you'll get to experience the me after loss that doesn't have a few years of coping in between. Much love to you in this time.

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  5. I had an ectopic in 2010. I lost my left tube completely. I was so stubborn about waiting it out and letting it work out on its own, even after the doctor told my husband to take me to the ER the minute the pain seemed to worsen. By the time my doctor saw me and sent me to the hospital he estimated I would have been dead from sepsis within two hours. He told my husband he had taken out three fist size clots and a couple smaller ones. I didn't know I was pregnant until I was already losing it. The hardest part was the people around me didn't think I needed to mourn this baby since it wasn't planned and I didn't know it until it was gone. I was told a couple times by different people to just get over it. To this day I feel like I've never fully gotten over the death of my baby. Last week I just found out after 4 years of trying that I am pregnant again. I am having such a hard time with it, mostly because I am terrified of it happening. My new doctor made my appointment for 8 weeks and it has me so scared that by the time I get in, if it is ectopic it will be too late to save the tube and I'll lose my other one. Thank you for sharing your experience with us.

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    1. Megan, I'm so sorry hun for your loss. I understand what you're saying about other people not thinking you need to mourn. Please know, you have every right and need to mourn. Even as you have a new pregnancy, it's still important. Do not hesitate to ask to be seen before 8 weeks. Usually with a history of ectopics, they see you sooner and do quantitative hCGs. Please keep me posted. I hope the best for you.

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  6. Hi Rachel - thank you for your post. I've got a suspected ectopic pregnancy, but after 2 ultrasounds it's still unclear. The main symptom is bleeding/spotting and slow rising HCG, and no sac found on U/S. Last night I started to have a bit of a panic attack about it all, and started dreaming up symptoms. I really helped me to read what the actual symptoms are like from a first-hand experience. I am really sorry about what you have gone through. I hope you get your rainbow baby soon!

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    1. HI Anon, I'm so sorry you're going through this. I know all too well the waiting game and the fear. The hope you have tainted by so much fear and not knowing. Be as assertive as you need to be with your doctors to get the care you deserve. In the meantime, do whatever you can to take care of yourself during this time. Hugs. XXXX

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  7. I'm so sorry for your loss. Mine was 30 years ago and since I have a beautiful daughter but I never really got to grieve properly at the time and tube and all, I would like to have seen my little bit and been allowed to bury him. Instead when I asked I was told he probably was buried wit amputated limbs etc. and told a Cemetary. I must ask, is this usual procedure? I whisper to him every year and more around what would have been his birth time frame. I can't be the only woman who feels and wonders and distresses about this - no I'm not "over it" but I think it would help to have a safe place to grieve, understanding and answers. Anybody?

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  8. I had a "normal" miscarriage a year ago. It was devastating. So many other things were going on and I didn't really have a chance to deal. Then in September I realised I was suffering from depression. My husband was great, brought me to psychiatrist and put me on lexapro. I began to take control of my life. Things seemed better. Then I discovered I was pregnant (am pregnant). Three days later, I started spotting, the daily comfort pregnancy test was lighter than before. We went straight into hospital. HCG levels was only 51. Consultant wanted to monitor me as she could find no evidence in my uterus of a pregnancy other than thickened endometrium lining. Next day HCG levels were 42. She confirmed that it was almost definitely just a miscarriage (or super early pregnancy) and not an ectopic pregnancy. My husband had been about to cancel his trip to Darfur but I convinced him that since my life was not in danger, I could handle either of those outcomes. After all, it was only ten days. Every two days I went to the hospital. HCG Levels went down to 18. I began to bleed heavily. Two days later, they went up to 33. They readmitted me as they were afraid of ectopic and were aware that my husband was in the field. I stopped bleeding. Yesterday, they went up to 85. I begged my consultant to let me stay at home, I promised her that I had a great group of friends who would take care of me. She agreed as long as I returned to hospital daily for testing. In one hour, I am back getting bloods done, waiting for result, doing ultrasound, going home, waiting for the next day to begin all over again. I don't feel pregnant anymore but there is a little part of me that can't let go of the hope that they are wrong that each ultrasound will see a healthy heartbeat in my uterus. I don't know how long this will go on for. I don't know how I will be able to handle the wait. I just hope that I can handle it for another two days until my husband returns. I feel so numb. The hope is crushing and the despair just seems so much safer.

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  9. hi sorry for everything you've been through
    MY tubes been tied for 11 years I never missed a cycle, until now I'm 14 days late I have took several pregnancy test (N) no pain, morning sickness or anything could I be pregnant

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    1. It is possible. Go to your doctor for a blood test to rule it out. Something else might be going on as well, so I think it's important your provider knows that you've missed your first cycle in 11 years. Keep us posted. Best of luck

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  10. I've been diagnosed as a possible ectopi and I'm terrified. There have been multiple ultrasounds and nothing found in the uterus, only a cyst on my right ovary that has doubled in size in two weeks. I should be at 7.5 weeks. And today I have mild pain on my right rib side.

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  11. I have also been diagnosed with a possible ectopic. It's terrifying. Anyone on here?

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  12. Thank you for sharing your entire experience on the matter, Rachel. I’m sure your readers appreciated your effort to share your ectopic pregnancy story. I can only imagine the pain you had gone through, physically and emotionally. On a positive not, it’s great to hear about the support and care you got from reliable doctors and loving family. Anyway, I hope that story could serve as an eye-opener to all those expecting mothers out there. They might be experiencing the same pain, and they must act as soon as possible to prevent further risks for their health. Again, thank you for sharing your story. Take care!


    Sabrina Craig @ Medical Attorney

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  13. Thank you for your story. Ive been searching for real life answers. Im currently pregnant...or so i believe i still am. I have slow rising HCG levels and a urine test states i am. Ive been spotting since the 18th and have had severe and mild cramps. The spotting started out only when i wipe but now im having to wear panty liners. I have my first ultrasound on Aug. 5th....im scared im going to get bad news. Oh and might i add, i no longer feel pregnant. No more nausea or breast tenderness.

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  14. I had an ectopic pregnancy in April 2015. Had no pain associated with it pr anything. I started first just spotting here and there and then finally around 7 weeks along it turned bright red bleeding. I called my dr and they got me in later that day and did an u/s and bloodwork. Couldnt see anything in uterous. Went back in 2 days later for more blood work and found out my hcg levels were rising so went back in for more blood work and still hcg levels were rising. Had another u/s a week later and still seen nothing on u/s. They didn't even find anything in my tubes. It was determined eptopic and I was scheduled for surgery 2 days later. Although my tube had not ruptured I still lost my tube due to them not being able to get it to stop bleeding. Plus side to this all is my other tube looks healthy and since this was my first pregnancy I hope my next is a successful pregnancy.

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  15. I had an undiagnosed ruptured ectopic in September 2014. Lost my righr tube. Then blighted ovum with d and c May 2015. Just found out im pregnant again with a "likely " chance of ectopic.

    The first time i was spotting and lightly bleeding until it ruptured. This time i bled pretty heavily right as a had the positive test, for about three days. Hcg waa 14, two days later 47, but progesterone down from 3.5 to 1.8.

    THE BLEEDING HAS STOPPED COMPLETELY. i waa wondering if anyone has had an ectopic where the bleeding stopped. Hoping to beat the odds.

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  16. Thanks for this post. I had an ectopic in July 2015 and on my birthday i had to do a key hole surgery to remove my left tube. It was the worse feeling ever as i had to deal with the pain post surgery and the loss of a baby. Well now I am pregnant again but I'm terrified I will have another ectopic pregnancy and lose my right tube. I've got a scan tomorrow to see if the baby is in my uterus. The saddest thing about this is I told my doctor that I'd rather have a miscarriage than another ectopic. The loss that i experienced completely has stripped me out of the joy of being pregnant. Please wish me luck for tomorrow.

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  17. Thank you for this post as well as everyone else Idk what I have going on I had my last menstrual September 11 and it is now November 3 with no spotting or bleeding just cramping in lower middle abdomen and lower back pain also I had tubal ligation almost 5 years ago I have had several other symptoms of pregnancy but test negative on urine tests went to the doctor last week he done blood test for thyroid and 2 other thing's said they came back good but did not do blood test for pregnancy said my insurance may not cover it do to I had my tubes tied 5 years ago so idk what to do I hate to just wait it out and see if anything changes I feel like no one believes me :( any advice on what I should do the cramps hurt pretty much like a bad minstrel cramp for atleast two week's now non stop doesn't ease up and doesn't really get worse just very uncomfortable

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  18. I wanted to let you know that this post helped me diagnose my ectopic this morning. I was at the ER two nights ago and they said it was too early at 5w4d to see much but that they didn't see anything like ectopic. they sent me home in excruciating pain and the following night I kept feeling like I was going to pass out and couldn't move anything without screaming with pain. my husband took me back to the ER where the radiologist immediately said I was full of fluid and my tube had ruptured and the sac was sitting next to my ovary. I was taken in for emergency surgery and had 20 ml of fluid in my pelvis and a 100 ml clot in my abdomen. after surgery my right side hurt quite a bit and my center incision is seeping blood from having abdominal cavity washed out. but I can breathe with no pain in chest or shoulder which is great. without your post I would have not known what was happening.

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